The only girl in the world with this unknown disease has endured 38 surgeries, now just a few months left

Rare Diseases: Harleigh has only a few months left. She is the only child in the world with an unknown disease. Doctors have performed 38 surgeries over three years to try to cure her, but the answer remains elusive. As a doctor, she has only a few months left.

Harleigh Tidd Rare Disease Story: There are many such diseases in the medical world, about which not only common people but even doctors are not aware. A girl named Harleigh has a rare disease. She is the only girl in the world who has this disease and she is fighting for her life. She has undergone 38 surgeries in 3 years, despite this there is no chance of her survival. Let us tell you, what disease Harleigh Tidd, a resident of Gateshead (Tyne and Wear), UK, is suffering from and when did she come to know about it.

Herleigh's mother, Stacey, says that a scan at 36 weeks of pregnancy diagnosed her with a mysterious condition. In 2022, during a pregnancy scan, doctors noticed a dark patch near Herleigh's heart. It was later discovered that her lungs had shrunk and filled with fluid, and her heart had shifted out of place. Despite this, Herleigh was miraculously born, with only a 13 percent chance of survival. However, her condition worsened within a few days of birth, her lungs shrunk again, and she began having trouble breathing.

38 consecutive surgeries and now the 'last drain'

Since birth, Herlig had a chest drain tube to drain fluid from her body. Each time the fluid was removed from her lungs, it would fill up again. She underwent 38 surgeries over the past three years. Eventually, doctors diagnosed Herlig with Lymphangioleiomyomatosis (LAM), a disease in which lung muscle cells grow abnormally. She also had Chylothorax (leakage of lymph fluid into the lungs) and Skeletal Dysplasia (abnormal growth of bones and joints).

There is no cure left now

Herleigh's mother, Stacey, says the doctors said there was no cure left. "We've only spent seven months out of the hospital in the last three years." Herleigh now has a final drain tube, which will last about ten weeks. After that, she'll only be a few days old.

Last wish: A trip to Disneyland

Stacey and her husband, Stephen Tidd, 28, have begun palliative care for Harleigh and are now fundraising to take her to Disneyland. "We want Harleigh to be happy in her final days, and her smile will always be remembered," Stacey says. "She's our 'Little Warrior Princess,' the disease has broken her body, but not her smile."

Gives life even after death

The family has decided that after Harleigh's death, her organs will be donated so that her story can give life to someone else. "Our baby may be gone, but her light will live on in many lives," Stacey said.

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